Policy shapes outcomes. The amount of federal funding allocated to Lyme disease research, the standards that govern diagnostic testing, the insurance coverage that patients can access — all of these are affected by decisions made in government. Your voice matters in that process.
Current Advocacy Priorities
Increase Federal Funding for Lyme Disease Research
Federal funding for Lyme disease research remains disproportionately low relative to its burden. We advocate for increased NIH allocations to tick-borne disease research specifically and for dedicated funding streams that support the diagnostic and treatment gaps that patients experience every day.
Improve Insurance Coverage for Lyme Testing and Treatment
Many Lyme disease patients face insurance denials for specialist care, extended testing, and treatment protocols. We advocate for clear, fair coverage standards and support state-level legislation requiring reasonable coverage.
Advance Diagnostic Standards
Current CDC testing recommendations reflect technology from decades ago. We advocate for updated guidance that incorporates emerging evidence about early diagnostic sensitivity limitations and supports access to newer testing approaches as they are validated.
How to Take Action
- Contact your representatives. A personal letter or call to your Congressional representative or Senator is one of the most effective forms of advocacy. Use our template to make it easy.
- Share your story. Personal narratives are powerful in policy conversations. Stories from constituents change minds.
- Sign petitions and join campaigns. Our newsletter will alert you to active campaigns and urgent actions.
- Attend local and national meetings. Town halls, public comment periods, and legislative hearings are open to the public and to patient testimony.
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